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Note: This record shows only the 20 elements of the WHO Trial Registration Data Set. To view changes that have been made to the source record, or for additional information about this trial, click on the URL below to go to the source record in the primary register.
Register: Netherlands Trial Register
Last refreshed on: 27 May 2013
Main ID:  NTR871
Date of registration: 15/01/2007
Primary sponsor: Academic Medical Center (AMC), Department of Neurology
Public title: Timing of PEG tube placement in patients with amyotrophic lateral sclerosis: soon or later?
Scientific title: Earlier PEG placement in ALS patients with dysphagia: effects on survival, nutritional and functional status, and quality of life -
Date of first enrolment: 4/8/2004
Target sample size: 20
Recruitment status: recruiting
URL:  http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=871
Study type:  intervention
Study design:  Randomised: Yes; Masking: None; Control: Active; Group: Parallel; Type: -  
Countries of recruitment
The Netherlands
Contacts
Name: M.  Visser, de
Address:  Academic Medical Center, department of Neurology, PO box 22660 1100 DD Amsterdam The Netherlands
Telephone:
Email: m.devisser@amc.uva.nl
Affiliation: 
Name: M.M.  Graaff, van der
Address:  Academic Medical Centred, department of Neurology PO box 22660 1100 DD Amsterdam The Netherlands
Telephone: +31205663647
Email: m.m.vandergraaff@amc.uva.nl
Affiliation: 
Key inclusion & exclusion criteria
Inclusion criteria: 1. Patients with possible, probable, probable lab supported, or definite ALS;
2. Dysphagia Hillel score 7 or 8 (ALSSS dyspagia subscale);
3. Vital capacity >65%;
4. Age > 18 yr and < 85 yr;
5. Informed consent.

Exclusion criteria: 1. Contra-indication for PEG


Age minimum:
Age maximum:
Gender:
Health Condition(s) or Problem(s) studied
Dysphagia, Amyotrophic Lateral Sclerosis (ALS)

Intervention(s)
Early PEG (PEG placement within 4 weeks after inclusion) versus a "wait and see approach", with probably a PEG placement at a later stage
Primary Outcome(s)
Survival
Secondary Outcome(s)
1. Vital capacity;
2. BMI;
3. Triceps skinfold;
4. ALSFRS;
5. VAS Q0L;
6. SF 36;
Secondary ID(s)
ISRCTN63827964
N/A
Source(s) of Monetary Support
Prinses Beatrix Fonds
Secondary Sponsor(s)
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