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Note: This record shows only the 20 elements of the WHO Trial Registration Data Set. To view changes that have been made to the source record, or for additional information about this trial, click on the URL below to go to the source record in the primary register.
Register: Netherlands Trial Register
Last refreshed on: 28 April 2013
Main ID:  NTR3275
Date of registration: 06/02/2012
Primary sponsor: University Medical Center Utrecht (UMCU)
Public title: CLEfts and FEeding Difficulties (CLEFED-1): The effect and timing of surgical closure in children with cleft palate.
Scientific title: CLEfts and FEeding Difficulties (CLEFED-1): The effect and timing of surgical closure in children with cleft palate. -
Date of first enrolment: 1/3/2012
Target sample size: 80
Recruitment status: pending
URL:  http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=3275
Study type:  intervention
Study design:  Randomised: Yes; Masking: None; Control: Active; Group: Parallel; Type: 2 or more arms, randomized  
Countries of recruitment
The Netherlands
Contacts
Name: I.A.C.  Vries, de
Address:  Division of Pediatric Plastic Surgery Wilhelmina Children's Hospital University Medical Center Utrecht P.O.Box 85090 KE.04.140.0 3508 AB Utrecht The Netherlands
Telephone: +31 (0)88 7554004
Email: i.a.c.devries-5@umcutrecht.nl
Affiliation: 
Name: I.A.C.  Vries, de
Address:  Division of Pediatric Plastic Surgery Wilhelmina Children's Hospital University Medical Center Utrecht P.O.Box 85090 KE.04.140.0 3508 AB Utrecht The Netherlands
Telephone: +31 (0)88 7554004
Email: i.a.c.devries-5@umcutrecht.nl
Affiliation: 
Key inclusion & exclusion criteria
Inclusion criteria: 1. Childeren born with a cleft lip and palate or cleft palate that visit the cleft team;

2. Inclusion at the age of 5 months;

3. Adequate understanding of the Dutch language by the parents;

4. Informed consent.

Exclusion criteria: 1. Children that were adopted;

2. Children that are previous seen by another cleft-team (another hospital);

3. No informed consent.


Age minimum:
Age maximum:
Gender:
Health Condition(s) or Problem(s) studied
Cleft, Cleft palate, Feeding difficulties, Surgical closure

Intervention(s)
One group will undergo surgical closure between the age of 6-8 months and the other group between the age of 10-12 months. All patients will undergo this intervention following the standard, current protocol.
Primary Outcome(s)
1. Feeding techniques and skills, defined by scores from Montreal Children?s Hospital Feeding scale (MCH), Nijmeegse Observatielijst Lepelvoeding (NOL) and an observation lists focussed on children with clefts;

2. Weight gain (growth), defined by the difference in measurements (standard deviation) marked on a standardized growth-curve.
Secondary Outcome(s)
1. NS feeding (and duration);

2. Extent of the cleft palate;

3. Associated malformations;

4. Upper respiratory infections / pneumonia;

5. Medication (child);

6. Placement of grommets (middle ear tubes);

7. Complications/adverse effects.
Secondary ID(s)
11-340
Source(s) of Monetary Support
Fonds Nuts-Ohra
Secondary Sponsor(s)
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