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Note: This record shows only the 20 elements of the WHO Trial Registration Data Set. To view changes that have been made to the source record, or for additional information about this trial, click on the URL below to go to the source record in the primary register.
Register: Netherlands Trial Register
Last refreshed on: 28 April 2013
Main ID:  NTR1611
Date of registration: 02/01/2009
Primary sponsor: Erasmus Medical Center, Department of Cardiology and Radiology
Public title: Long term Results Congenital Cardiologic Abnormalities (LUCCA).
Scientific title: Long term Results Congenital Cardiologic Abnormalities (LUCCA). Cardiologic and Psychologic follow up after heartsurgery for congenital heart abnormalities of patients born with a congenital heart defect, in the period 1980 - 1990. - LUCCA
Date of first enrolment: 1/2/2009
Target sample size: 280
Recruitment status: recruiting
URL:  http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=1611
Study type:  intervention
Study design:  Randomised: No; Masking: None; Control: Not applicable; Group: [default]; Type: Single arm  
Countries of recruitment
The Netherlands
Contacts
Name: P.T.E.  Ruys
Address:  Erasmus MC Rotterdam 's Gravendijkwal 230, Afd. cardiologie/thoraxchirurgie 3015 CE Rotterdam The Netherlands
Telephone: +31 (0)10 7033989
Email: titiaruys@hotmail.com
Affiliation: 
Name: J.W.  Roos-Hesselink
Address:  Erasmus Medical Center, Department of Cardiology, P.O. Box 2040 3000 CA Rotterdam The Netherlands
Telephone: +31 (0)10 4632432
Email: j.roos@erasmusmc.nl
Affiliation: 
Key inclusion & exclusion criteria
Inclusion criteria: The following patient group with a congenital heart disease operated on in the Erasmus MC in the period 1980 till 1990, younger then 15 at operation:

atrial septum defect (ASD), tetralogy of Fallot, transposition of the great arteries and a complex heart disease.

Exclusion criteria: Non compos mentis, mentally disabled persons.



Age minimum:
Age maximum:
Gender:
Health Condition(s) or Problem(s) studied
Congenital heart defects

Intervention(s)
This study is a clinical longitudinal cohort study. Interventions: ECG 12 lead, 24 hour holter, bicycle exertion test, TTE, Physical examination, Psychological investigation, MRI.
Primary Outcome(s)
Mortality, morbidity (defined as re-operation, re-intervention, pacemaker implantation, arrhythmias and cardiac failure).

Secondary Outcome(s)
Heart function of the left and right ventricle, exercise capacity and quality of life.

Secondary ID(s)
THCHOZ 2008-12
Source(s) of Monetary Support
Erasmus Medical Center, Department of Cardiology
Secondary Sponsor(s)
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