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Note: This record shows only 22 elements of the WHO Trial Registration Data Set. To view changes that have been made to the source record, or for additional information about this trial, click on the URL below to go to the source record in the primary register.
Register: ClinicalTrials.gov
Last refreshed on: 12 December 2020
Main ID:  NCT00340964
Date of registration: 19/06/2006
Prospective Registration: No
Primary sponsor: National Human Genome Research Institute (NHGRI)
Public title: Positive Exposure: A Photography and Video Intervention for Individuals With Craniofacial Differences
Scientific title: Positive Exposure: A Photography and Video Intervention for Individuals With Craniofacial Differences
Date of first enrolment: June 13, 2005
Target sample size: 44
Recruitment status: Completed
URL:  https://clinicaltrials.gov/show/NCT00340964
Study type:  Observational
Study design:   
Phase: 
Countries of recruitment
United States
Contacts
Name:     Barbara B Biesecker
Address: 
Telephone:
Email:
Affiliation:  National Human Genome Research Institute (NHGRI)
Key inclusion & exclusion criteria

- INCLUSION CRITERIA:

- Participants must be at least 12 years old.

- Participants must have a clinically diagnosed craniofacial condition.

- Participants must be able to speak and write in English. However, if individuals have
trouble writing (i.e. dyslexia or dysgraphia), they can tape record their personal
reflections, which will be transcribed verbatim for analysis.

EXCLUSION CRITERIA:

- If the individual is younger than 12 years of age.

- If the individual does not speak English.

- If the individual has been photographed by Rick Guidotti or another professional
photographer in the past.

- If the individual has been video-interviewed by Diane McLean.

- If the individual has cognitive impairments that would preclude successfully
completing the various steps of the study.



Age minimum: 12 Years
Age maximum: 20 Years
Gender: All
Health Condition(s) or Problem(s) studied
Craniofacial Differences
Intervention(s)
Primary Outcome(s)
Secondary Outcome(s)
Secondary ID(s)
05-HG-N173
999905173
Source(s) of Monetary Support
Please refer to primary and secondary sponsors
Secondary Sponsor(s)
Ethics review
Results
Results available:
Date Posted:
Date Completed:
URL:
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