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Main
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Note: This record shows only 22 elements of the WHO Trial Registration Data Set. To view changes that have been made to the source record, or for additional information about this trial, click on the URL below to go to the source record in the primary register. |
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Register:
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ISRCTN |
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Last refreshed on:
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13 January 2015 |
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Main ID: |
ISRCTN12175122 |
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Date of registration:
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23/01/2004 |
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Prospective Registration:
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No |
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Primary sponsor: |
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Public title:
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Development of a postal questionnaire to measure satisfaction with services received in the year before death.
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Scientific title:
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Date of first enrolment:
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23/06/1995 |
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Target sample size:
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230 |
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Recruitment status: |
Completed |
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URL:
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http://isrctn.com/ISRCTN12175122 |
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Study type:
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Interventional |
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Study design:
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Randomised controlled trial (Not Specified)
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Phase:
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Countries of recruitment
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United Kingdom
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Contacts
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Name:
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Address:
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Telephone:
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Email:
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Affiliation:
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Name:
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Julia
Addington-Hall |
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Address:
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Department of Palliative Care and Policy
Guy?s, King?s and St Thomas? School of Medicine
New Medical School
Bessemer Road
SE5 9PJ
London
United Kingdom |
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Telephone:
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Affiliation:
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Key inclusion & exclusion criteria
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Inclusion criteria: A random sample of death was drawn from death certificates of residents in an inner London health district who died from cancer and whose death were registered by someone resident in, or near, the district.
Exclusion criteria: Not provided at time of registration
Age minimum:
Age maximum:
Gender:
Not Specified
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Health Condition(s) or Problem(s) studied
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Symptoms and general pathology: Pain
Signs and Symptoms
Pain
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Intervention(s)
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1. Postal questionnaire
2. Interview questionnaire
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Primary Outcome(s)
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Questionnaire responses. Of the 431 informants who were sampled for this study, 230 agreed to take part giving a response rate of 53%. This corresponded to 56% of those approached to become postal respondents and 52% of the informants approached to become interviewees. These results demonstrate that the postal questionnaire is a viable alternative to interviews for use in collecting information on outcomes in palliative care, at least in terms of response rate. Overall the results of this study show that the postal questionnaires are a viable alternative to a face-to-face interview in retrospective bereavement surveys of care for the dying. However, particular care needs to be paid to ensuring that the wording of the questionnaire is ambivalent and are understood by members of the target population, and, in particular that respondents are helped to identify whether the deceased did in fact receive care from target services. The VOICES questionnaire is currently being revised in the light of these findings.
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Secondary Outcome(s)
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Not provided at time of registration
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Source(s) of Monetary Support
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NHS Primary and Secondary Care Interface National Research and Development Programme (UK)
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Results
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Results available:
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Date Posted:
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Date Completed:
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URL:
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