Guidelines for the Development of a National Programme for Haemophilia
WHO/HGN/WFH/GL/96.1
Document produced by the WHO Division ofNoncommunicable Diseases
Jones, P.
Technical Units
Order Number    19300075 Format    Package
Price    CHF    12.00 / US$    14.40 Developing countries:    CHF    8.40
English     1996        76   pages
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Summary
Provides guidelines for the development of national programmes for the management of haemophilia and related bleeding disorders. Noting that, worldwide, only around 20% of patients with severe haemophilia receive treatment, the document aims to encourage health professionals and service planners, particularly in developing countries, to launch cost-effective programmes for the provision of prompt diagnosis, safe and effective therapy, and adequate screening and counselling services. As the author repeatedly argues, these disorders are eminently treatable; though treatment is expensive, failure to treat is far more costly in terms of chronic incapacity, handicaps, and human suffering.
The document, which was produced in collaboration with the World Federation of Hemophilia, draws on the latest scientific knowledge as well as a vast body of practical experience. A brief factual introduction to haemophilia and its significance as a public health problem is followed by technical information in twelve specific areas important to the development of a national programme. Topics covered include diagnosis, treatment, laboratory tests, follow up, counselling services, and the use of carrier detection and prenatal diagnosis as preventive strategies. The report also issues several timely reminders concerning the importance of home therapy and prophylaxis, the reliance on centres of expertise, and the many reasons why haemophilia patients should be encouraged to live economically productive and socially and physically active lives.