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1. Introduction
1.1 Is privacy a culturally dependant concept?
1.2 Is respect for privacy important in the uptake of eHealth?
1.3 Privacy or confidentiality of EHRs - a note on terminology
2.The ethical and legal aspects of privacy in health care: a literature review
2.1 Privacy of health related information as an ethical concept
2.2 The protection of privacy in health related information through law
2.3 Binding international law and privacy in health related information
The Universal Declaration of Human Rights
The European Convention on Human Rights
European Union Directive on the protection of individuals with regard to theprocessing of personal data and on the free movement of such data
2.4 International non-binding agreements
Convention for the Protection of Individuals with regard to Automatic Processing of Personal Data
Council of Europe Recommendation No. R (97) 5 on the protection of medical data
WHO: A Declaration on the Promotion of Patients' Rights in Europe
2.5 National law on privacy of health related information
Use of EHRs in Brazil
Legislative responses to EHRs in the USA
3.Analysis of survey results
3.1.General privacy legislation
Results
Discussion
3.2 EHR privacy legislation
Results
Discussion
3.3 Legislation to regulate the sharing of health related data for patient care
Results
Discussion
3.4 Legislation on patient access and the control of EHRs
Results
Discussion
3.5 EHRs for research
Results
Discussion
4.Conclusions
4.1 Building trust
4.2 Making data work: expanding the uses of EHRs
5.References 69
6. Appendix 1. Methodology of the second global survey on eHealth
Purpose
Survey implementation
Survey instrument
Survey development
Data Collector
Preparation to launch the survey
Survey
Limitations
Data processing
Response rate
Response rate by WHO region
Response rate by World Bank income group
References
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