Planning and Developing Population-Based Cancer Registration in Low- and Middle-income Settings
IARC Technical Report, No. 43
Bray, F., Znaor, A., Cueva, P., Korir, A., Swaminathan, R., Ullrich, A., Wang, S.A., Parkin, D.M.
ISBN-13    9789283204350 ISBN-10    9283204352
Order Number    17700043 Format    Paper Back
Price    CHF    20.00 / US$    24.00 Developing countries:    CHF    14.00
English     2014        48   pages
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This guidance document consists of six chapters that provide technical advice to planners and health specialists in low and middle-income countries wishing to implement and develop Population-based Cancer Registration (PBCR) as information system that inform cancer control policy.

This first chapter has placed the need for cancer registration in the context of the rapidly increasing burden from the disease seen worldwide. Chapter 2 describes the characteristics of the different types of cancer registry and the unique functions of PBCRs and their present status worldwide. Chapters 3 and 4 outline the critical steps in planning and developing a PBCR in lower-resource settings, ncluding discussion of the key sources of information required and the minimal standard set of data items that the PBCR should collect. Aspects in the set-up that will help ensure the sustainability of the registry are emphasized, including comments on infrastructure and resource requirements as well as the commitment of stakeholders. Chapter 5 describes the main techniques to evaluate and further enhance the data quality at the PBCR. Chapter 6 provides some advice on reporting the results to the community at large in support of cancer control and thus promoting the increasing utility of the registry.